The Battle to Recovery from POTS Syndrome: Trying to Sit Up

MY BATTLE TO RECOVERY FROM POTS SYNDROME - DYSAUTONOMIA & CHRONIC ILLNESS.

The Battle to Recovery from POTS Syndrome

Trying to Sit Up

I laid down for 2 years straight while suffering with POTS. Anytime I tried to sit up I would pass out almost immediately and start convulsing and gasping for air.

I had no clue why my body was behaving the way it was and neither did my doctors.

And just like that the temptation to blame yourself begins. How many “normal” tests can you get back before you start to wonder if the problem is you!

So what do you do? You find others with similar conditions and try to figure out what they did to get better.

But that only made things worse.

It was SO hard to talk to others with similar conditions and have them tell me the way to get better is to push yourself when I was not able to push without passing out.

THEM – “Even though you want to, you can’t lay down. You just have to force yourself to walk. That’s the only way you are going to get better!” #potssyndrome

ME – “But I pass out.”

THEM – “Oh, well I don’t know, but you just have to figure out a way to walk and move around as much as possible”

I always left those conversations feeling awful because it made me feel like I just wasn’t doing enough.

All of our conditions are unique to us as individuals, even if we have the same diagnosis. What works for me now, didn’t work for me a year ago. 

Don’t ever feel like you aren’t doing enough because the best you can do is sit up for 5 minutes in bed!

1 COMMENT

  1. I’m so glad to have found you. Thank you for sharing your story and your adventures. I can relate. I was diagnosed with mast cell activation syndrome and pots. Now, there’s the development of neuropathy amongst other symptoms. Continue to live life courageously. It’s inspiring to many others.

    Best,

    Janielle

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